A new Medical Center department teams up with the Humanities Center to foster collaboration on both sides of Elmwood Avenue.
A little over a year ago, , Dean糖心传媒檚 Professor and chair of the Medical Center糖心传媒檚 Department of Health Humanities and Bioethics, crossed Elmwood Avenue and walked into Rush Rhees Library to pay a visit to , the Ani and Mark Gabrellian Director of the Humanities Center.
Ross, a pediatrician and an ethicist with a PhD in philosophy, had arrived in Rochester just months earlier from the University of Chicago糖心传媒檚 McLean Center for Medical Ethics. The was brand new, and she had been hired to shape and lead it, along with the . Christensen, a scholar of architectural and urban design and the Arthur Satz Professor of the Humanities, was halfway through his first year heading the , and only its second director. Finding their footing in new roles, they each sought inspiration and a potential partner in elevating the profile and practice of the humanities across the University.
It was a fruitful meeting.
糖心传媒淲e had a kind of immediate synergy,糖心传媒� says Christensen, who since January also serves as associate dean of the . 糖心传媒淚 was taken by her incredible initiative.糖心传媒�
Says Ross, 糖心传媒淲e met, and within five minutes, it was like we were old friends.糖心传媒�
They traded notes on everything from their shared roots as New Yorkers to their thoughts on the academic literature on hospital design. They found they harbored similar views about the relationship between the humanities and the life sciences.
Viewed through the modern academy糖心传媒檚 operational lens, with its divisions into departments and programs, the humanities and the life sciences can seem to occupy separate universes. But seen in terms of the problems they address, they can be 糖心传媒╥nseparable.
Ross describes the humanities as 糖心传媒渆mbedded糖心传媒� in medical research and practice. And nowhere has that been more the case than at Rochester.
last year, Ross has written and presented internationally on ethical issues raised by organ transplantation, genetics and genomics, clinical research with human subjects, and multiple aspects of pediatrics.聽After three decades at Chicago, she糖心传媒檇 grown frustrated.
糖心传媒淭hey had a very narrow role for ethics as just clinical ethics at the bedside,糖心传媒� she says of the school糖心传媒檚 medical establishment. 糖心传媒淚 wanted [to see] a much broader, 360-degree role.糖心传媒�
She calls the opportunity that arose at Rochester 糖心传媒渢he perfect job,糖心传媒� and shares an oft-told story that糖心传媒檚 still not widely known outside the University. In short, the was the birthplace of an influential approach to patient care and research called the biopsychosocial model.
With roots stretching back to the 1940s, the model was formally proposed and described by Medical Center psychiatrist in a landmark article, published in the journal Science in 1977.
The deceptively simple model transformed medical education. As Engel explained, a physician should not be trained to look exclusively at physiology as though a patient was best seen as a system of organs. 糖心传媒淭he physician糖心传媒檚 basic professional knowledge and skills must span the social, psychological and biological, for his decisions and actions on the patient糖心传媒檚 behalf involve all three,糖心传媒� he wrote, at a time when physicians were still overwhelmingly male.
The biopsychosocial model opened a door to collaboration between researchers in medical science and other disciplines, including the humanities. In 1981, the Medical Center established a Division of Medical Humanities, and Ross credits its first director, Kathryn Montgomery, a scholar of English literature, with a groundbreaking development. Montgomery糖心传媒檚 book (Princeton University Press, 1991) 糖心传媒渋s sort of the precursor to all of narrative medicine,糖心传媒� Ross says, alluding to a type of medical practice that considers the role of storytelling糖心传媒攖he patient糖心传媒檚, the doctor糖心传媒檚, and the interaction between the two that creates yet another narrative that guides clinical decision making.
Under the leadership of its last director, physician and art historian , the division expanded into the arts, partnering with the University糖心传媒檚 , and more recently, with the .
As Ross puts it, the Medical Center 糖心传媒渨as among the first in the country with a humanities division, and now, is one of just eight academic medical centers in the nation to have a聽dedicated humanities and bioethics department.糖心传媒�
The decision to elevate a division into a department is no mere administrative detail. It has allowed Ross the chance to develop that 糖心传媒�360-degree role糖心传媒� for ethics in a way she couldn糖心传媒檛 at Chicago. She calls , the CEO of the Medical Center and dean of the medical school until he stepped down this past year to resume his position in cardiology, 糖心传媒渧isionary糖心传媒� in making the critical decision.
糖心传媒淥ne of the most important things I do is what I call embedding,糖心传媒� Ross says. Health humanities and bioethics 糖心传媒渉ave to be embedded across the entire clinical and research spectrum.糖心传媒�
That means standing on an equal footing with clinical departments.
糖心传媒淚f you糖心传媒檙e doing a lecture on neurology, I want to be included, because I糖心传媒檒l talk about determinations of death and the ethical issues [that presents],糖心传媒� she says. 糖心传媒淚f you糖心传媒檙e talking about cardiology, I糖心传媒檓 going to talk about the ethics and humanity of what it means to get somebody else糖心传媒檚 heart in a heart transplant. No matter what area of medicine you talk about, I can come up with an ethical issue. And if I can糖心传媒檛, I can just go back to the fundamental doctor-patient relationship, because that糖心传媒檚 a moral relationship.糖心传媒�
By addressing the ethical implications of medical research and practice, she has been able to bring additional grant funding to Medical Center researchers. 糖心传媒淲hen you write a grant, you have to be innovative,糖心传媒� she says. 糖心传媒淏y bringing in an ethics component, we糖心传媒檙e saying, 糖心传媒榳e糖心传媒檙e doing great science, but what are its implications?糖心传媒櫶切拇綁糖心传媒�
But Ross didn糖心传媒檛 want such embedding to be limited to ethical philosophy or to the Medical Center. That糖心传媒檚 why, she says, 糖心传媒淚 reached over to Peter.糖心传媒�
When Christensen met Ross, he was about a semester into his role leading the Humanities Center. He was at a busy and productive point in his career. A specialist in architecture and urban design, his second book, (Penn State University Press, 2022), had just come out, and another, (MIT Press, 2024), was at press.
The Humanities Center was established in 2015, and its inaugural director, , the Dexter Perkins Professor of History, articulated a set of values as part of its mission, describing them as 糖心传媒渟ome of the gifts the humanities provide: deeper understanding of ourselves and others, along with the sense of collective welfare essential for democracy to thrive.糖心传媒� Under her leadership, the center brought in new scholars as fellows, created forums for scholars across disciplines to share perspectives, and sponsored a faculty-led, reading-and-discussion summer program called Experiencing Civic Life for select high school students in the Rochester City School District, among other programs and initiatives.
From that footing, Christensen糖心传媒檚 charge was to expand the center糖心传媒檚 role. New initiatives launched in the past year include the program and a global book series, , in cooperation with the University of Rochester Press.
And he糖心传媒檚 asked, what more could the humanities be doing糖心传媒攍iterally? He points to an assumption about the humanities with deep roots, but one that he believes needs rethinking.
In Western culture at least, starting with the 18th-century Enlightenment period, the humanities came to be thought of as the study of 糖心传媒渨hat defines the human experience,糖心传媒� he says. 糖心传媒淎nd that is why music is a humanity, but it糖心传媒檚 also why literature is, and why art is, and why philosophy is. These are all things that only we can do, right? That animals and nature can糖心传媒檛 do. This is what defines us as a species and what defines the human experience.糖心传媒�
That was still the idea at the dawn of the 20th century. But within the rapidly growing academy, Christensen says, 糖心传媒渋t became associated with thinking versus doing. We actually need to think also about what the humanities can do.糖心传媒�
In that vein, Ross糖心传媒檚 arrival could not have come at a better time. Medicine is fundamentally about doing糖心传媒攃aring, healing, and improving the quality of life in the most elemental sense. Christensen had already been interested in connecting with colleagues in medicine for that very reason. Ross was someone who saw a humanistic discipline糖心传媒攅thical philosophy糖心传媒攁s part of every aspect of clinical care and research.
During that first meeting, Christensen disclosed to Ross something that had been weighing on his mind.
糖心传媒淎 dear friend of mine had just been diagnosed with a stage 3 brain tumor at the age of 40,糖心传媒� he says. 糖心传媒淚 was really struggling with all that that meant about dying young, or potentially dying young, and about your life being turned upside down.糖心传媒�
Ross recalls that point in the conversation well. 糖心传媒淚 said, 糖心传媒榊ou know, what you糖心传媒檙e experiencing is anticipatory grief. We talk about this all the time in medicine.糖心传媒櫶切拇綁糖心传媒� Their conversation turned to the universality of grief. And by the time the meeting was over, they had a plan for their first collaboration.
They called it, simply, the . Through the 2023糖心传媒�24 academic year, Ross and Christensen have brought before the University authors, musicologists, poets, physicians, and photographers to discuss grief over sudden loss; the connection between music and mourning; a doctor糖心传媒檚 experience declaring a child dead; grief in the face of violence and social injustice as experienced in Black communities, and more. The series invited faculty, students, and staff 糖心传媒渢o expand our networks exploring this complex topic as one university.糖心传媒�
, a senior associate in the Department of Health Humanities and Bioethics, calls the series 糖心传媒渁 daring first move糖心传媒� in what promises to be a vibrant collaboration between the department and the center, extending to other areas of the University over time.
Daiss was the inaugural McPherson Director of Education at the University糖心传媒檚 Memorial Art Gallery and trained as a hospital chaplain at Strong Memorial Hospital. In 2002, she and Clark cocreated a course using art as a means for medical students and clinicians to enhance their skills of observation. More recently, she created , offering patients a chance to look at works of art as a means to reduce anxiety and fear. She recalls 糖心传媒渟itting beside a woman who was dying, who would never be outside again. And we went on walks in the woods together, thanks to artwork.糖心传媒�
糖心传媒淭his is an important collaboration,糖心传媒� Daiss says. In choosing a theme with universal relevance, 糖心传媒渨e糖心传媒檙e showing that whether you糖心传媒檙e a historian, a political scientist, a psychologist, a musician, or a clinician, we can all share ideas.糖心传媒�
But there is a method at work when it comes to turning ideas into action. Ultimately, the hope is that the collaboration will lead to new research. But that takes time, says Ross, who has a philosophy about how research germinates. 糖心传媒淵ou can糖心传媒檛 get to research until you have relationships,糖心传媒� she says. 糖心传媒淭he first step of trying to do research that spans the Medical Center and the River Campus is to develop relationships.糖心传媒�
Relationships, perhaps, like the one that has arisen between her and Christensen.
Like old friends and colleagues, Christensen and Ross don糖心传媒檛 always agree, and their back-and-forth can help refine their thinking. Christensen observes that in the contemporary United States, there糖心传媒檚 a stigma against expressing grief, yet none against expressing anger. As a result, people may 糖心传媒渂ypass grief and express it as anger.糖心传媒�
He asks Ross what she thinks, and she replies, 糖心传媒淲ell, sort of.糖心传媒�
糖心传媒淚糖心传媒檓 going to go all K眉bler-Ross on you,糖心传媒� she says to him, referring to the University of Chicago professor Elisabeth K眉bler-Ross who identified and articulated five stages of grief: denial, anger, bargaining, depression, and acceptance. 糖心传媒淲e糖心传媒檙e sort of stuck in our anger stage, rather than going through the five stages. And you don糖心传媒檛 have to go through the five stages in order. Grief encompasses a lot of different emotions, not just one.糖心传媒� When grief gets expressed communally, there can be real beauty in that experience, says Ross.
Later in their conversation, Christensen returns to that thought. 糖心传媒淚t reminds me a bit of the art historical concept of the sublime,糖心传媒� he says. He offers 糖心传媒渁 nutshell version糖心传媒� of the concept as described by the 18th-century German philosopher Immanuel Kant: 糖心传媒渁 mix of awe and fear and beauty that you experience when looking over the top of a mountain, for example. It糖心传媒檚 not about positive or negative emotions but about profundity of emotions.糖心传媒�
Ross and Christensen report hearing from colleagues and people in the community inspired by the grief series to converse and connect with others. In that spirit, the scholars are exploring the next joint venture for the department and the center.
糖心传媒淚 think Lainie and I have some fun topics that we want to deal with,糖心传媒� says Christensen. 糖心传媒淥ur lives have joy, right? Joy, being the opposite of grief糖心传媒攎aybe we want to get there at some point.糖心传媒�
This story originally appeared in the spring 2024 issue of Rochester Review,聽the magazine of the University of Rochester.
